Venous leak soft gland syndrome 12 years later - any success stories? Surgery?

Hi, I don’t have permission to post in the injuries forum. Could someone move this post there?

I’m looking for anyone who has managed to recover from a venous leak, which I think is the same as soft glans syndrome, or has some information about what works and doesn’t. Exercises, surgery, whatever.

This condition - when you get erect, blood is not trapped in the penis (or sections of the penis) as it should be, so the erection doesn’t get fully hard and deflates quickly and easily, even with stimulation.

In 2010 I saw that someone went to Taiwan to have ligation surgery (where they tie off the veins) with some success. It cost them £7,000. I came off these forums back then and hoped that it might recover on it’s own but 12 years later and I still have ED. In my case it’s the corpus spongiosum (bottom chamber), which links to the glans/head which is defective. The corpus cavernosum (two chambers on top) works pretty well and looks pretty normal. I think I also have mild nerve damage as the sensation in sex etc. Can often feel uncomfortable. Blowjobs are supposed to feel good aren’t they? This might be more due to the lack of pressure though.

I was doing PE in 2008-2010 ish. I’m 31 now in mid 2022. I did lots of stupid extreme stuff as a 18-20 year old trying to force my dick to grow. In hindsight it was perfectly fine as it was. I was so foolish. The irony was I just wanted to have sex but I’ve completely fucked up ever knowing what it was supposed to feel like, or just having normal sex. I tired jelqing, bends, clamping, pumping, hanging, stretches. There was someone back then who had massive gains from clamping and called it plastic deformation. I vaguely remember when my injury happened. I was either clamping and using a pump at the same time, or clamping and pressing the glands to add pressure, but I saw the glans quickly deflate. No pain.

Any help would be really appreciated. I’ve been living with this for 12 years and if anything it’s getting worse. Although I’m a positive person It’s effected my relationships, sex life and lot’s of other areas of my life. I’ve been using cock rings but they don’t work very well and I get numb pretty quick as it needs to be tight to do anything. I visited a hospital (penis?) department through the NHS years ago after it happened and was told.’it looks like a normal penis’. I’ll see if the NHS can do anything for me now but I’m looking for any surgery specialists or success or failure stories of any kind.

My health is good. I’m slim, workout, pretty fit, don’t smoke, hardly drink, work in a trade so active, eat healthy food mostly. I have a decent sex drive. Haven’t had a blood test for years (because the NHS are stingy) but was normal last time. I have Psoriasis that I’m trying to heal but that’s not relevant.

Thanks!

Something similar has happened to some of the members here. Take a look at this thread: Iodine Journal

I’d say there’s no real success there but thanks.

I’m really sorry to hear that you’ve been living with this injury for so long jimi_d. I hadn’t heard of venous leaks before, but certainly sounds like a traumatic injury that everyone practicing PE could learn from. Thank you for sharing your story.

I did a quick search for “penile venous leak” on “Google Scholar” and skimmed over a few articles (links below). I’m not sure how the healthcare system works out in the U.K., but personally, I would recommend seeing a general practitioner doctor and get their referral to a specialist who can perform either a “doppler flow analysis” and/or “computed tomography cavernosography” to get a diagnosis, and then discuss your treatment options (sounds like these are treatments successful, and potentially non-invasive).

Best of luck on your journey, and I hope you find the care you need!

https://link.sp ringer.com/arti … 155-022-00283-5

https://www.res earchgate.net/p … Dysfunction.pdf

Thank you very much Endlessforms that is really encouraging.

Please keep us updated! Hopefully someone who has had a success story will eventually weigh-in too.

There are treatments for venous leak and some of them have a decent success record but as always there’s a catch. First there’s the flood of devices and shockwave therapy and buy this little device and you’ll be cured. Not happening. Next issue is going to a urologist and if it’s a true venous leak oh you may find a guy who as a urologist thinks he can fix it. Think for a minute; with a VL is anything wrong with your dick? No not at all. The problem is the vein, the vasculature, and I would look for a good vascular surgeon!

I had symptoms of venous leak, but was too stubborn or anxious to go to a physician, so I found a remedy, that basically cleared me off those symptoms to an acceptable degree. I try so sum up every bit of training that worked for me. It was a lot of reading, to get to my point. In total, I’d say my VL was cured after a month and gets better by the week.

I had problems maintaining an erection when standing, only when sitting this problem was less prominent.

The problem for me was, that my IC muscle did not clench hard enough to keep the blood in my member. Also my pelvic floor was too weak and my BC was tight. My coccygeus, illiococcygeus and maybe my pubococcygeus seemed to weak specifically.

The IC and said muscles weaken from sitting and masturbating in a sitting position. Over the years they weaken to the degree that one day they cannot clench hard enough to do their job: restraining venous outflow out of the penis. So training those muscles was paramount for me. You can get erections sitting with VL, because you have pressure around those muscles by default when sitting. Also, I had to ditch kegels and reverse kegels. People here have great success with it, and I believe them, but e.g. Just yesterday I did kegels again and my EQ was bad again. Just focus on loosening up the BC, let it ‘hang’, but do not tighten or strain (reverse kegel) them. That worked for me.

The last issue that I think I found was tight hip muscles from excessive sitting. Most people have tight hips and an anterior pelvic tilt as a result, but most don’t get problems from this.

My solution was doing heavy squats, pelvic, leg and hip stretches (opening flower position, happy baby position, splits like in martial arts, etc.; I think any yoga video on youtube will do) and IC/pelvic training. Also, I tried (and still do!) to push my hip/ penis forward to correct the pelvic tilt. Correcting the tilt is harder in the beginning because of the tightness in your hip, but it got better by the day. Lastly, I never masturbate sitting anymore and don’t watch porn. When watching porn, some people tend to tighten up and lose the ability to maintain an erection without. If you don’t want to ditch porn, at least consume it standing.

Especially finding the IC muscle is hard to do, but once you have it, it’s magic. This was a game changer.

My symptoms now are that, when I am doing a solo, I lose my erection after 10-20 secs of no stimulation, but I never had any problem with somebody around. I just avoid standing during sex.