OK Tweaking and others please read and let me know. (Just in case no one pays attention I will be posting this at another thread I started here: Advice from experts on glans problem )
I was really surprised by learning that several people on this forum have experienced my problem of soft glans. I was most surprised when people attributed t to PE, as now it really scared me since I started to do PE for the sake of improving my erection and at some point this was working!
I have no unified theory on this but my experience strongly supports one channel/disorder that could lead to this, and it has nothing to do with PE. Having said this I cannot say that PE does not cause or worsen this. Before I tell you my story however, I would really like to read and advice me on whether I should avoid doing PE.
In 2004 I had a onset of chronic pelvic pain syndrome (CPPS), that remains with me until this day. I have never PE-ed, and did not even know about PE by then. As many of you know this CPPS manifests itself in various ways but could be summarized as having discomfort in the pelvic area. No question in my mind, this is muscular, although I do not deny the possibility of a chemical trigger for this. 5 months after this episode, I was once taking a hot bath (which typically alleviates my problem) and I was shocked/scared to see that my one very firm erection was looking very weird with deflated G and C. I have never seen that before. I felt a door to hell has just opened, and that the rest of my life is going to be a nightmare. It was for 2 more years. I couldn’t do anything about it. I did all kind of exams, nothing came up except an opinion by the experts that I have CPPS and that there is not much to do about it except stretching, relaxation, trigger point massage. Drs at Stanford expert on this issue told me I had a lot of trigger points, and I could tell you I feel them. I can massage them and watch myself get a bit better.
Now what puzzles me is that WHY THE HELL that this deflated G symptom not show up until 5 months!! In fact the first 3-4 months were the worst in terms of pain. How come? In fact, one doubt I still have until today, is that I might have overdone the hot bath thing, which I was doing very regularly these days. Could that have weakened my PC muscle? I really don’t understand why this happened almost overnight. In fact, a lot of people with much more severe CPPS report that their hard erections remain unchanged, even after 5-10 years!
The big question is: is this reversible? I would like to be in touch with some of you, as I am curious about your symptoms, and maybe we can learn from each other. I tell you my experience: when I take care of my pelvic floor through stretches, relaxation, trigger points,., my erection DOES get better, OVERNIGHT! Yes. And the days when I have the most pain/discomfort are the days when I am most likely to wake up with a defalted G or some weird weak erection. Having said that, persistent improvement seem to only be achievable, for now to me at least, over time. Almost 8 years after, my erection is much better than those wretched early years of pain. In fact, I could tell you that for several years I was not able to have sex with a condom because my sensation was lowered and erection weakened to a point that any further reduction in sensation was fatal to my erection..
About Kegel exercises. There are a lot of forums on CPPS but probably the best is this one: http://www.chro … itis.com/forum/
Everyone there would tell you (including the VERY knowledgeable moderator) that Kegels are a no-no for people with CPPS. In fact, I tried and it put me in pain for weeks! Also for some people the onset of symptoms have started with Kegel or similar exercises ! So I wonder how come many of people here do so many Kegels without getting CPPS. At the same time, some of you who are complaining of issues might have just developed these issues because of harming the PC muscle through repetitive Kegel?? (I wonder)
Final points: deflated glans and CC are a much better description of my symptoms than firm flaccid. I don’t know why some people say it is the same thing. I have read the symptoms of firm flaccid, and well I only had that following an PE-injury which went on for few days before resolving on its own. The flaccid glans is simply that when I have an erection the glans are soft as well as the back side of the penis particularly if I lay on my back.. Again, I have improved quite a bit but I would say only 60%-70% on the best days.
I think we need to think whether this is an injury to the PC muscle that causes all this, and if so, how to make it heal. I would be really interested to see how some of you here would react to stretching/internal and external trigger point massage.. IF you do get better with these, that would further corroborate the muscle story..
Thoughts much appreciated. One of my questions is whether I should avoid PE just because I have CPPS. Again, when I was doing it at some point my erections seem to have gotten better not worse. It also seems to me that there is a very fine line between exercising properly and overexercising.